Eastern Iowa Corridor Parkinson's Resources
EASTERN IOWA MOVEMENT DISORDER SPECIALISTS
University of Iowa Neurology Clinic - Parkinson's Disease (clinical trials may be available)
2007 Roy J. Carver Pavilion (RCP) - Elevator E, Level 2
www.uihc.org/parkinsons-disease-clinic 319-356-2580
Dr. Ergun Uc Dr. Annie Killoran Pascale Doresca, ARNP
Dr. Kumar Narayanan Dr. Christopher Groth
Dr. Teri Thomsen Dr. Qiang (Johnson) Zhang
Iowa City VA Health Care System – Movement Disorders Clinic
601 Highway 6 West
Iowa City, IA 52246
www.iowacity.va.gov 319-338-0581 | 800-637-0128
Dr. Ergun Uc
Dr. Annie Killoran
PHYSICAL/OCCUPATIONAL THERAPY PROGRAMS
LSVT “BIG” Program
Intensive one-on-one movement program conducted by a Physical or Occupational Therapist. Improves movement, balance, and gait. Physician referral often required. Most insurance companies cover cost. Contact clinic for more information.
Unity Point Outpatient Physical Therapy Cedar Rapids
Michelle Langston, PT, Jenny Jenatscheck PTA,
Karla Simmen, OT, Rosemary Russell COTA 319-369-7331
Mercy Medical Center Outpatient Physical Therapy Cedar Rapids
Nichole Plagge, PT, DPT 319-398-6020
Benjamin Kurt, PT, DPT 319-861-7776
Cedar Valley Physical Therapy, Cedar Rapids
Todd Neighbor, PT, DPT 319-294-6694
Kepros Physical Therapy & Performance, Cedar Rapids
319-200-6102
UIHC Physical Therapy, Iowa City
Stephanie Evans, PT, DPT or Amy Yotty, PT, DPT
Rachel Rose, OT 319-356-2663
VA Medical Center, Iowa City
Brooke Lantz, PTA or Rachel Murphy, PT 319-338-0581
Progressive Rehabilitation Associates, Iowa City
Kayla Uhlenhake, PT, DPT 319.354.2429
Ability Physical Therapy, Marion
Rachel Richers, DPT 319-373-7311
Rock Valley Physical Therapy, PCI Cedar Rapids
Emma LeClaire, PT, DPT Cedar Rapids: (319) 247-3425
Rock Valley Physical Therapy, Iowa City & North Liberty
Cathy Herman, PT, DPT Iowa City: (319) 337-8818 North Liberty: (319) 665-2555
SPEECH THERAPY PROGRAMS
Lee Silverman Voice Training
Vocal training conducted by Speech Language Pathologists. Voice training is important for those with PD to maintain or regain a strong voice, plus maintain or improve swallowing. Swallowing difficulties are common in later stages of Parkinson’s Disease. Physician referral often required. Most insurance companies cover cost. Contact clinic for more information.
Unity Point – St Luke’s, Cedar Rapids
Renee Perlwitz, SLP 319-369-7331
Mercy Medical Center Council St, Cedar Rapids
Kelly Martin, SLP 319-398-6881
Wendell Johnson Speech and Hearing Clinic, Iowa City
Ann Fennell, SLP 319-335-8736
SPEAK OUT!®
SPEAK OUT!® followed by The LOUD Crowd® is a two-part speech therapy program for individuals with Parkinson's developed by Parkinson Voice Project. SPEAK OUT!® consists of intensive individual speech therapy sessions and the goals are to strengthen the muscles for speech/swallowing and to teach individuals to speak with intent. Upon graduating SPEAK OUT!®, individuals transition to the maintenance program, The LOUD Crowd®
Progressive Rehabilitation Associates, LLC
Megan Batzer, M.A., CCC-SLP 319-688-7630
In-patient: Mercy Iowa City Out-patient clinics: Mercy Medical Plaza and Tipton
Wendell Johnson Speech and Hearing Clinic
Ann Fennell M.S., CCC-SLP 319-335-8736
Unity Point – St Luke’s, Cedar Rapids
Renee Perlwitz, M.S.,CCC-SLP 319-369-7331
CEDAR RAPIDS METRO PARKINSON'S EXERCISE/WELLNESS CLASSES
Most programs are held in person and on Zoom. If you cannot attend one of our classes, please visit our YouTube channel for exercise videos you can do at your own convenience.
Contact Kris Cameron 319-361-7673 kriscameron@crmetroparkinsons.com for Cedar Rapids Metro Parkinson's Association class information, or visit www.crmetroparkinsons.com for a current schedule and registration information. Zoom links are also posted on our website calendar
Moving With Parkinson’s Exercise -
Monday/Wednesday/Friday 11:15am-12:00pm
Parkin-Singers Vocal Exercise
Tuesdays 2:00pm-2:30pm
Cedar Rapids Metro Parkinson's Support Group
Third Thursday at 4:00pm. No meeting in December.
Rock Steady Boxing at Grand Living Please contact Carolyn Hanson at Grand Living Indian Creek 319-930-3250 ext. 4008
Parkinson’s Exercise at PCI Medical Pavillion Classes start in the Fall & Spring for 8 sessions each. Contact Emma LeClaire, Rock Valley PT at PCI Cedar Rapids: (319) 247-3425
OTHER AREA PARKINSON'S CLASSES/GROUPS
Rock Steady Boxing at ICOR - Iowa City
Contact icorboxing@gmail.com Call: (319) 244-8282
Rock Steady Boxing at Grand Living Bridgewater - Coralville
Please call 319-569-0102 ext 4008
Iowa City Support Group
Third Tuesday at 6:00pm Grand Living Bridgewater-Coralville
Contact: Wanda Crombie wanda.crombie@mediacombb.net
Delay the Disease - Jones County (Support Group)
Allison Niedermann 319-481-6195 or allison.neidermann@unitypoint.org
STATE AND NATIONAL ASSOCIATIONS
AMERICAN PARKINSON’S DISEASE ASSOCIATION – Iowa Chapter
(Sign up for quarterly magazine and notification of Annual Iowa Parkinson’s Conference)
https://www.apdaparkinson.org/community/iowa/ or 515-241-6379
PARKINSON’S FOUNDATION-CENTER OF EXCELLENCE AT THE UNIVERSITY OF IOWA
https://uihc.org/news/ui-named-center-excellence-parkinsons-care
Davis Phinney Foundation for Parkinson’s www.davisphinneyfoundation.org 866-358-0285
Wellness focused (request free “Every Victory Counts” manual and/or “Parkinson’s Exercise Essentials” DVD)
Parkinson’s Foundation www.parkinson.org Helpline 1.800.4PD.INFO (1-800-473-4636)
for answers to all your questions. Staffed by nurses, social workers and therapists, the Helpline is here to support you in any possible way. Offers online webinars so you can learn at home about the latest research, developments, and wellness.
(request free “Aware In Care Kit” containing tools and information to share with hospital staff during a planned or emergency hospital visit)
RESOURCES AND INFORMATION IN SPANISH https://www.parkinson.org/espanol
Michael J Fox Foundation www.michaeljfox.org 1-800-708-7644
Research and advocacy focused. Get involved in research and trials in your area or join Fox Insight, an online clinical study. Data is being collected for the study right here at the University of Iowa.
Offers online webinars so you can learn at home about the latest research, developments, and wellness.
RESOURCES AND INFORMATION IN SPANISH https://www.michaeljfox.org/conociendo-la-enfermedad-de-parkinson
American Parkinson’s Disease Association www.apdaparkinsons.org 1-800-223-2732
The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works to assist the more than 1 million Americans with PD live life to the fullest.
Offers online webinars so you can learn at home about the latest research, developments, and wellness.
RESOURCES AND INFORMATION IN SPANISH https://www.apdaparkinson.org/resources-support/en-espanol/
Support for Care Partners
CAREGIVING SUPPORT
*All the above associations offer caregiver information and support.
Family Caregivers Center of Mercy 901 8th Ave. SE Cedar Rapids (319) 221-8866
The Family Caregivers Center of Mercy is Eastern Iowa’s only comprehensive resource serving family caregivers caring for adults. Services are available for caregivers regardless of their hospital or physician affiliation.
Unity Point Caregivers Support Group 1026 A Ave NE Cedar Rapids
Mondays 4:00-5:00pm St. Luke’s Hospital 6th Floor Lounge
National Alliance for Caregiving www.caregiving.org
The Caregiver Space www.thecaregiverspace.org
Well Spouse Association www.wellspouse.org
RECOMMENDED PUBLICATIONS
- Brain & Life Magazine (American Academy of Neurology) www.brainandlife.org
- 10 Breakthrough Therapies for Parkinson's Disease (book) Michael S. Okun M.D.
- 300 Tips for Making Life with Parkinson's Disease Easier (book) Shelley Peterman Schwarz
- A Parkinson’s Primer: An Indispensable Guide to Parkinson’s Disease for Patients and Their Families (book) John Vine
- Parkinson’s Treatment: 10 Secrets to a Happier Life (book) Michael S. Okun M.D.
- A Life Shaken Joel Havemann
- Brain Storms: The Race to Unlock the Mysteries of Parkinson's Disease Jon Palfreman
- Both Sides Now: A Journey from Researcher to Patient (book) Alice Lazzarini, PhD
- A Funny Thing Happened on the Way to the Future: Twists and Turns and Lessons Learned (book) Michael J. Fox
- A Soft Voice in a Noisy World Karl Robb
- The New Parkinson’s Disease Treatment Book: Partnering with Your Doctor to Get the Most from Your Medications, 2nd Edition (book) Dr. J. Eric Ahlskog
- Parkinson's Diva: A Woman's Guide to Parkinson's Disease (book)Maria De Leon MD
- Aware In Care Hospital Program FREE kit available at https://www.parkinson.org/Living-with-Parkinsons/Resources-and-Support/Hospital-Kit
AWARE IN CARE HOSPITALIZATION KIT
Research has found that three out of four people with Parkinson’s do not receive medications on time when staying in the hospital, and that when this occurs two out of three will experience unnecessary complications.
With more frequent hospital visits and a high sensitivity to the timing and dosing of PD medications, people with Parkinson’s face great risks in the hospital.
At the Parkinson’s Foundation, it is our mission to help people with Parkinson’s disease live better lives, and that includes staying safe while in the hospital. We want to help people affected by PD to be “Aware in Care,” which means they:
- Understand the risks associated with hospital stays.
- Have tools to play an active role in their care.
- Are prepared for a hospital visit, whether planned or unplanned.
- Have a plan to get the best possible care in the hospital.
Please click on the "MORE" tab at the top of the webpage to learn more about receiving your hospitalization kit. Be aware, be prepared.
REGISTRATION REQUIRED FOR IN-PERSON PROGRAMS
Space is limited and registration is required for most programs via SignUpGenius. Programs will continue on Zoom for those who wish to continue online.