• Home
  • our programs
  • Parkinson's Resources
  • Special Events
  • Donors and sponsors
  • Contact Us
  • PD in the NEWS
  • PD Hospital Kit
  • Newly Diagnosed Resources
  • More
    • Home
    • our programs
    • Parkinson's Resources
    • Special Events
    • Donors and sponsors
    • Contact Us
    • PD in the NEWS
    • PD Hospital Kit
    • Newly Diagnosed Resources
  • Home
  • our programs
  • Parkinson's Resources
  • Special Events
  • Donors and sponsors
  • Contact Us
  • PD in the NEWS
  • PD Hospital Kit
  • Newly Diagnosed Resources

Area Parkinson's Resources

If you are newly diagnosed, you don't have to feel alone or lost. 

We have created a resource list of area wellness programs, support groups, healthcare providers, caregiving support, and national resources including recommended books and materials.

There are plenty of resources, both in the Cedar Rapids/Iowa City corridor and nationally, to assist you! 

Thanks to the Parkinson's Foundation for making the publication and distribution of these resource guides possible through a community grant.

DOWNLOAD RESOURCE GUIDE

Eastern Iowa Corridor Parkinson's Resources

Tulips are the symbol for Parkinson's awareness.

EASTERN IOWA MOVEMENT DISORDER SPECIALISTS

University of Iowa Neurology Clinic - Parkinson's Disease (clinical trials may be available)

2007 Roy J. Carver Pavilion (RCP) - Elevator E, Level 2   

www.uihc.org/parkinsons-disease-clinic    319-356-2580

 Dr. Ergun Uc Dr. Annie Killoran Pascale Doresca, ARNP

Dr. Kumar Narayanan        Dr. Christopher Groth     

Dr. Teri Thomsen        Dr. Qiang (Johnson) Zhang

                                                            

Iowa City VA Health Care System – Movement Disorders Clinic

601 Highway 6 West

Iowa City, IA 52246

www.iowacity.va.gov  319-338-0581 | 800-637-0128

Dr. Ergun Uc

Dr. Annie Killoran

PHYSICAL/OCCUPATIONAL THERAPY PROGRAMS

LSVT “BIG” Program

Intensive one-on-one movement program conducted by a Physical or Occupational Therapist. Improves movement, balance, and gait. Physician referral often required.  Most insurance companies cover cost.  Contact clinic for more information.


Unity Point Outpatient Physical Therapy Cedar Rapids

Michelle Langston, PT, Jenny Jenatscheck PTA, 

Karla Simmen, OT,  Rosemary Russell COTA 319-369-7331


Mercy Medical Center Outpatient Physical Therapy Cedar Rapids

Nichole Plagge, PT, DPT 319-398-6020

Benjamin Kurt, PT, DPT               319-861-7776

 

Cedar Valley Physical Therapy, Cedar Rapids

Todd Neighbor, PT, DPT 319-294-6694


Kepros Physical Therapy & Performance, Cedar Rapids

319-200-6102

 

UIHC Physical Therapy, Iowa City

Stephanie Evans, PT, DPT  or Amy Yotty, PT, DPT

Rachel Rose, OT 319-356-2663

 

VA Medical Center, Iowa City

Brooke Lantz, PTA or Rachel Murphy, PT        319-338-0581

 

Progressive Rehabilitation Associates, Iowa City

Kayla Uhlenhake, PT, DPT 319.354.2429


Ability Physical Therapy, Marion

Rachel Richers, DPT    319-373-7311


Rock Valley Physical Therapy, PCI Cedar Rapids

Emma LeClaire, PT, DPT Cedar Rapids: (319) 247-3425


Rock Valley Physical Therapy, Iowa City & North Liberty

Cathy Herman, PT, DPT   Iowa City: (319) 337-8818   North Liberty: (319) 665-2555


SPEECH THERAPY PROGRAMS

Lee Silverman Voice Training

Vocal training conducted by Speech Language Pathologists. Voice training is important for those with PD to maintain or regain a strong voice, plus maintain or improve swallowing. Swallowing difficulties are common in later stages of Parkinson’s Disease. Physician referral often required.  Most insurance companies cover cost.  Contact clinic for more information.

 

Unity Point – St Luke’s, Cedar Rapids

Renee Perlwitz, SLP 319-369-7331

 

Mercy Medical Center Council St, Cedar Rapids

Kelly Martin, SLP 319-398-6881

 

Wendell Johnson Speech and Hearing Clinic, Iowa City

Ann Fennell, SLP 319-335-8736


SPEAK OUT!®

SPEAK OUT!® followed by The LOUD Crowd® is a two-part speech therapy program for individuals with Parkinson's developed by Parkinson Voice Project. SPEAK OUT!® consists of intensive individual speech therapy sessions and the goals are to strengthen the muscles for speech/swallowing and to teach individuals to speak with intent. Upon graduating SPEAK OUT!®, individuals transition to the maintenance program, The LOUD Crowd®


Progressive Rehabilitation Associates, LLC

Megan Batzer, M.A., CCC-SLP 319-688-7630

In-patient: Mercy Iowa City   Out-patient clinics: Mercy Medical Plaza and Tipton


Wendell Johnson Speech and Hearing Clinic

Ann Fennell M.S., CCC-SLP 319-335-8736


Unity Point – St Luke’s, Cedar Rapids

Renee Perlwitz, M.S.,CCC-SLP 319-369-7331


CEDAR RAPIDS METRO PARKINSON'S EXERCISE/WELLNESS CLASSES

Most programs are held in person and on Zoom. If you cannot attend one of our classes, please visit our YouTube channel for exercise videos you can do at your own convenience.

Contact Kris Cameron  319-361-7673 kriscameron@crmetroparkinsons.com for Cedar Rapids Metro Parkinson's Association class information, or visit www.crmetroparkinsons.com for a current schedule and registration information. Zoom links are also posted on our website calendar


Moving With Parkinson’s Exercise -

          Monday/Wednesday/Friday 11:15am-12:00pm 


Parkin-Singers Vocal Exercise

          Tuesdays 2:00pm-2:30pm


Cedar Rapids Metro Parkinson's Support Group

        Third Thursday at 4:00pm. No meeting in December.


Rock Steady Boxing at Grand Living Please contact Carolyn Hanson at Grand Living Indian Creek 319-930-3250 ext. 4008


Parkinson’s Exercise at PCI Medical Pavillion Classes start in the Fall & Spring for 8 sessions each. Contact Emma LeClaire, Rock Valley PT at PCI Cedar Rapids: (319) 247-3425


OTHER AREA PARKINSON'S CLASSES/GROUPS

Rock Steady Boxing at ICOR - Iowa City

          Contact  icorboxing@gmail.com Call: (319) 244-8282


Rock Steady Boxing at Grand Living Bridgewater - Coralville

        Please call 319-569-0102 ext 4008


Iowa City Support Group

        Third Tuesday at 6:00pm Grand Living Bridgewater-Coralville

        Contact: Wanda Crombie wanda.crombie@mediacombb.net


Delay the Disease - Jones County (Support Group)

           Allison Niedermann 319-481-6195 or allison.neidermann@unitypoint.org



STATE AND NATIONAL ASSOCIATIONS

AMERICAN PARKINSON’S DISEASE ASSOCIATION – Iowa Chapter 

(Sign up for quarterly magazine and notification of Annual Iowa Parkinson’s Conference)

https://www.apdaparkinson.org/community/iowa/  or  515-241-6379


PARKINSON’S FOUNDATION-CENTER OF EXCELLENCE AT THE UNIVERSITY OF IOWA

https://uihc.org/news/ui-named-center-excellence-parkinsons-care 


Davis Phinney Foundation for Parkinson’s   www.davisphinneyfoundation.org  866-358-0285

Wellness focused (request free “Every Victory Counts” manual and/or “Parkinson’s Exercise Essentials” DVD)


Parkinson’s Foundation  www.parkinson.org Helpline 1.800.4PD.INFO (1-800-473-4636) 

for answers to all your questions. Staffed by nurses, social workers and therapists, the Helpline is here to support you in any possible way. Offers online webinars so you can learn at home about the latest research, developments, and wellness.

(request free “Aware In Care Kit” containing tools and information to share with hospital staff during a planned or emergency hospital visit)

RESOURCES AND INFORMATION IN SPANISH https://www.parkinson.org/espanol


Michael J Fox Foundation  www.michaeljfox.org 1-800-708-7644

Research and advocacy focused. Get involved in research and trials in your area or join Fox Insight, an online clinical study. Data is being collected for the study right here at the University of Iowa. 

Offers online webinars so you can learn at home about the latest research, developments, and wellness.

RESOURCES AND INFORMATION IN SPANISH https://www.michaeljfox.org/conociendo-la-enfermedad-de-parkinson


American Parkinson’s Disease Association  www.apdaparkinsons.org 1-800-223-2732

The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works to assist the more than 1 million Americans with PD live life to the fullest.

Offers online webinars so you can learn at home about the latest research, developments, and wellness.

RESOURCES AND INFORMATION IN SPANISH https://www.apdaparkinson.org/resources-support/en-espanol/



Support for Care Partners

caregiving

CAREGIVING SUPPORT

*All the above associations offer caregiver information and support.


Family Caregivers Center of Mercy   901 8th Ave. SE  Cedar Rapids  (319) 221-8866

The Family Caregivers Center of Mercy is Eastern Iowa’s only comprehensive resource serving family caregivers caring for adults. Services are available for caregivers regardless of their hospital or physician affiliation.


Unity Point Caregivers Support Group  1026 A Ave NE  Cedar Rapids   

Mondays 4:00-5:00pm  St. Luke’s Hospital 6th Floor Lounge


National Alliance for Caregiving    www.caregiving.org 

The Caregiver Space   www.thecaregiverspace.org

Well Spouse Association  www.wellspouse.org


RECOMMENDED PUBLICATIONS

  •  Brain & Life Magazine (American Academy of Neurology)   www.brainandlife.org
  • 10 Breakthrough Therapies for Parkinson's Disease (book)  Michael S. Okun M.D.
  • 300 Tips for Making Life with Parkinson's Disease Easier (book) Shelley Peterman Schwarz
  • A Parkinson’s Primer: An Indispensable Guide to Parkinson’s Disease for Patients and Their Families  (book) John Vine
  • Parkinson’s Treatment: 10 Secrets to a Happier Life (book) Michael S. Okun M.D.
  • A Life Shaken  Joel Havemann
  • Brain Storms: The Race to Unlock the Mysteries of Parkinson's Disease Jon Palfreman
  • Both Sides Now: A Journey from Researcher to Patient  (book) Alice Lazzarini, PhD
  • A Funny Thing Happened on the Way to the Future: Twists and Turns and Lessons Learned  (book) Michael J. Fox
  • A Soft Voice in a Noisy World   Karl Robb
  • The New Parkinson’s Disease Treatment Book: Partnering with Your Doctor to Get the Most from Your Medications, 2nd Edition  (book) Dr. J. Eric Ahlskog
  • Parkinson's Diva: A Woman's Guide to Parkinson's Disease (book)Maria De Leon MD 
  • Aware In Care Hospital Program FREE kit available at https://www.parkinson.org/Living-with-Parkinsons/Resources-and-Support/Hospital-Kit

AWARE IN CARE HOSPITALIZATION KIT

Research has found that three out of four people with Parkinson’s do not receive medications on time when staying in the hospital, and that when this occurs two out of three will experience unnecessary complications. 


With more frequent hospital visits and a high sensitivity to the timing and dosing of PD medications, people with Parkinson’s face great risks in the hospital.


At the Parkinson’s Foundation, it is our mission to help people with Parkinson’s disease live better lives, and that includes staying safe while in the hospital. We want to help people affected by PD to be “Aware in Care,” which means they:


  • Understand the risks associated with hospital stays.
  • Have tools to play an active role in their care.
  • Are prepared for a hospital visit, whether planned or unplanned.
  • Have a plan to get the best possible care in the hospital.

Please click on the "MORE" tab at the top of the webpage to learn more about receiving your hospitalization kit. Be aware, be prepared.

Copyright © 2018 Cedar Rapids Metro Parkinson's Association - All Rights Reserved.

 




 

Powered by GoDaddy Website Builder

  • Contact Us

REGISTRATION REQUIRED FOR IN-PERSON PROGRAMS

Space is limited and registration is required for most programs via SignUpGenius. Programs will continue on Zoom for those who wish to continue online.

MORE INFORMATION