Eastern Iowa Corridor Parkinson's Resources
EASTERN IOWA MOVEMENT DISORDER SPECIALISTS
University of Iowa Neurology Clinic - Parkinson's Disease (clinical trials may be available)
2007 Roy J. Carver Pavilion (RCP) - Elevator E, Level 2
www.uihc.org/parkinsons-disease-clinic 319-356-2580
Iowa City VA Health Care System – Movement Disorders Clinic
601 Highway 6 West
Iowa City, IA 52246
www.iowacity.va.gov 319-338-0581 | 800-637-0128
PHYSICAL/OCCUPATIONAL THERAPY PROGRAMS
LSVT “BIG” Program
Intensive one-on-one movement program conducted by a Physical or Occupational Therapist. Improves movement, balance, and gait. Physician referral may be required. Most insurance companies cover the cost. Contact clinic for more information. For a current listing of certified instructors, please visit www.lsvtglobal.com/lsvtfindclinicians
Unity Point Outpatient Physical Therapy, Cedar Rapids 319-369-7331
Mercy Medical Center Outpatient Physical Therapy, Cedar Rapids 319-398-6020
Cedar Valley Physical Therapy, Cedar Rapids 319-294-6694
Kepros Physical Therapy& Performance, Cedar Rapids 319-200-6102
Rock Valley Physical Therapy, PCI Cedar Rapids (319) 247-3425
Collins Rec Center Physical Therapy, Cedar Rapids 319-295-8899
Ability Physical Therapy, Marion 319-373-7311
Unity Point - Jones Regional Medical Center, Anamosa 319-481-6327
Advanced Therapy Specialists, Cedar Rapids 319-377-0937
UIHC Physical Therapy, Iowa City 319-356-2663
VA Medical Center, Iowa City 319-338-0581
Progressive Rehabilitation Associates, Iowa City 319-354-2429
On With Life, Coralville 319-259-6224
Rock Valley Physical Therapy, Iowa City & North Liberty Iowa City: (319) 337-8818 North Liberty: (319) 665-2555
SPEECH THERAPY PROGRAMS
Lee Silverman Voice Training
Vocal training conducted by Speech Language Pathologists. Voice training is important for those with PD to maintain or regain a strong voice, plus maintain or improve swallowing. Swallowing difficulties are common in later stages of Parkinson’s Disease. Physician referral often required. Most insurance companies cover cost. Contact clinic for more information.
Unity Point – St Luke’s, Cedar Rapids
Mercy Medical Center Council St, Cedar Rapids
SPEAK OUT!®
SPEAK OUT!® followed by The LOUD Crowd® is a two-part speech therapy program for individuals with Parkinson's developed by Parkinson Voice Project. SPEAK OUT!® consists of intensive individual speech therapy sessions and the goals are to strengthen the muscles for speech/swallowing and to teach individuals to speak with intent. Upon graduating SPEAK OUT!®, individuals transition to the maintenance program, The LOUD Crowd®
Progressive Rehabilitation Associates, LLC 319-688-7630
Unity Point – St Luke’s, Cedar Rapids 319-369-7331
CEDAR RAPIDS METRO PARKINSON'S EXERCISE/WELLNESS CLASSES
Most programs are held in person and on Zoom. If you cannot attend one of our classes, please visit our YouTube channel for exercise videos you can do at your own convenience.
Contact Kris Cameron 319-361-7673 kriscameron@crmetroparkinsons.com for Cedar Rapids Metro Parkinson's Association class information, or visit www.crmetroparkinsons.com for a current schedule and registration information. Zoom links are also posted on our website calendar
Moving With Parkinson’s Exercise -
Monday/Wednesday/Friday 11:00 am-11:50 am
Parkin-Singers Vocal Exercise
Tuesdays 2:00pm-2:30pm
PD Dance
Tuesdays 1:00pm - 1:45pm
Cedar Rapids Metro Parkinson's Support Group
Third Friday at 12:00pm. No meeting in December.
Parkinson’s Exercise at PCI Medical Pavilion
Contact Emma LeClaire, Rock Valley PT at PCI Cedar Rapids: (319) 247-3425
OTHER AREA PARKINSON'S CLASSES/GROUPS
Rock Steady Boxing at ICOR - Iowa City
Contact icorboxing@gmail.com Call: (319) 244-8282
Rock Steady Boxing at Grand Living Bridgewater - Coralville
Please call 319-569-0102 ext 4008
Iowa City Support Group
Third Tuesday at 6:00pm Grand Living Bridgewater-Coralville
Contact: Contact Angie Longou alongou@skogman.com 319-631-2385
or Gloria Drapac gloria.drapac@gmail.com
Delay the Disease - Jones County (Support Group)
Allison Niedermann 319-481-6195 or allison.neidermann@unitypoint.org
STATE AND NATIONAL ASSOCIATIONS
AMERICAN PARKINSON’S DISEASE ASSOCIATION – Iowa Chapter
(Sign up for quarterly magazine and notification of Annual Iowa Parkinson’s Conference)
https://www.apdaparkinson.org/community/iowa/ or 515-241-6379
PARKINSON’S FOUNDATION-CENTER OF EXCELLENCE AT THE UNIVERSITY OF IOWA
https://uihc.org/news/ui-named-center-excellence-parkinsons-care
Davis Phinney Foundation for Parkinson’s www.davisphinneyfoundation.org 866-358-0285
Wellness focused (request free “Every Victory Counts” manual and/or “Parkinson’s Exercise Essentials” DVD)
Parkinson’s Foundation www.parkinson.org Helpline 1.800.4PD.INFO (1-800-473-4636)
for answers to all your questions. Staffed by nurses, social workers and therapists, the Helpline is here to support you in any possible way. Offers online webinars so you can learn at home about the latest research, developments, and wellness.
(request free “Aware In Care Kit” containing tools and information to share with hospital staff during a planned or emergency hospital visit)
RESOURCES AND INFORMATION IN SPANISH https://www.parkinson.org/espanol
Michael J Fox Foundation www.michaeljfox.org 1-800-708-7644
Research and advocacy focused. Get involved in research and trials in your area or join Fox Insight, an online clinical study. Data is being collected for the study right here at the University of Iowa.
Offers online webinars so you can learn at home about the latest research, developments, and wellness.
RESOURCES AND INFORMATION IN SPANISH https://www.michaeljfox.org/conociendo-la-enfermedad-de-parkinson
American Parkinson’s Disease Association www.apdaparkinsons.org 1-800-223-2732
The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works to assist the more than 1 million Americans with PD live life to the fullest.
Offers online webinars so you can learn at home about the latest research, developments, and wellness.
RESOURCES AND INFORMATION IN SPANISH https://www.apdaparkinson.org/resources-support/en-espanol/
Support for Care Partners
CAREGIVING SUPPORT
*All the above associations offer caregiver information and support.
Family Caregivers Center of Mercy 9000 C Ave NE Cedar Rapids (319) 221-8866
The Family Caregivers Center of Mercy is Eastern Iowa’s only comprehensive resource serving family caregivers caring for adults. Services are available for caregivers regardless of their hospital or physician affiliation. L
DeWolf Innovation Center for Aging & Dementia at 9000 C Ave NE.
Unity Point Caregivers Support Group 1026 A Ave NE Cedar Rapids
Mondays 4:00-5:00pm St. Luke’s Hospital 6th Floor Lounge
National Alliance for Caregiving www.caregiving.org
The Caregiver Space www.thecaregiverspace.org
Well Spouse Association www.wellspouse.org
RECOMMENDED PUBLICATIONS
- Brain & Life Magazine (American Academy of Neurology) www.brainandlife.org
- 10 Breakthrough Therapies for Parkinson's Disease (book) Michael S. Okun M.D.
- 300 Tips for Making Life with Parkinson's Disease Easier (book) Shelley Peterman Schwarz
- A Parkinson’s Primer: An Indispensable Guide to Parkinson’s Disease for Patients and Their Families (book) John Vine
- Parkinson’s Treatment: 10 Secrets to a Happier Life (book) Michael S. Okun M.D.
- A Life Shaken Joel Havemann
- Brain Storms: The Race to Unlock the Mysteries of Parkinson's Disease Jon Palfreman
- Both Sides Now: A Journey from Researcher to Patient (book) Alice Lazzarini, PhD
- A Funny Thing Happened on the Way to the Future: Twists and Turns and Lessons Learned (book) Michael J. Fox
- A Soft Voice in a Noisy World Karl Robb
- The New Parkinson’s Disease Treatment Book: Partnering with Your Doctor to Get the Most from Your Medications, 2nd Edition (book) Dr. J. Eric Ahlskog
- Parkinson's Diva: A Woman's Guide to Parkinson's Disease (book)Maria De Leon MD
- Aware In Care Hospital Program FREE kit available at https://www.parkinson.org/Living-with-Parkinsons/Resources-and-Support/Hospital-Kit
PARKINSON'S FOUNDATION HOSPITALIZATION KIT
Research has found that three out of four people with Parkinson’s do not receive medications on time when staying in the hospital, and that when this occurs two out of three will experience unnecessary complications.
With more frequent hospital visits and a high sensitivity to the timing and dosing of PD medications, people with Parkinson’s face great risks in the hospital.
At the Parkinson’s Foundation, it is our mission to help people with Parkinson’s disease live better lives, and that includes staying safe while in the hospital. We want to help people affected by PD to be “Aware in Care,” which means they:
- Understand the risks associated with hospital stays.
- Have tools to play an active role in their care.
- Are prepared for a hospital visit, whether planned or unplanned.
- Have a plan to get the best possible care in the hospital.
Please click on the "MORE" tab at the top of the webpage to learn more about receiving your hospitalization kit. Be aware, be prepared.
Please support the CR Metro Parkinson's Association
Whether it is Giving Tuesday, or a year end donation, please help to support our free programs for people with PD and their care partners!