Area Parkinson's Resources

If you are newly diagnosed, you don't have to feel alone or lost. 

We have created a resource list of area wellness programs, support groups, healthcare providers, caregiving support, and national resources including recommended books and materials.

There are plenty of resources, both in the Cedar Rapids/Iowa City corridor and nationally, to assist you! 

Eastern Iowa Corridor Parkinson's Resources

Tulips are the symbol for Parkinson's awareness.

EASTERN IOWA MOVEMENT DISORDER SPECIALISTS

University of Iowa Neurology Clinic - Parkinson's Disease (clinical trials may be available)

2007 Roy J. Carver Pavilion (RCP) - Elevator E, Level 2   

www.uihc.org/parkinsons-disease-clinic    319-356-2580

Dr. Ergun Uc

Dr. Kumar Narayanan

Dr. Teri Thomsen

Dr. Annie Killoran

                                                                    Dr. Christopher Groth                                                                  


Iowa City VA Health Care System – Movement Disorders Clinic

601 Highway 6 West

Iowa City, IA 52246

www.iowacity.va.gov  319-338-0581 | 800-637-0128

Dr. Ergun Uc

Dr. Annie Killoran

PHYSICAL/OCCUPATIONAL THERAPY PROGRAMS

LSVT “BIG” Program

Intensive one-on-one movement program conducted by a Physical or Occupational Therapist. Improves movement, balance, and gait. Physician referral often required.  Most insurance companies cover cost.  Contact clinic for more information.


Unity Point Outpatient Physical Therapy Cedar Rapids

Michelle Langston, PT, Jenny Jenatscheck PTA, 

Karla Simmen, OT,  Rosemary Russell COTA 319-369-7331


Mercy Medical Center Outpatient Physical Therapy Cedar Rapids

Nichole Plagge, PT, DPT 319-398-6020

 

Cedar Valley Physical Therapy, Cedar Rapids

Todd Neighbor, PT, DPT 319-294-6694


Kepros Physical Therapy & Performance, Cedar Rapids

Lauren Saehler, PT, DPT          319-200-6102

 

UIHC Physical Therapy, Iowa City

Stephanie Evans, PT, DPT  or Amy Yotty, PT, DPT

Rachel Pins, OT 319-356-2663

 

VA Medical Center, Iowa City

Brooke Lantz, PTA or Rachel Murphy, PT        319-338-0581

 

Progressive Rehabilitation Associates, Iowa City

Kayla Uhlenhake, PT, DPT 319.354.2429


SPEECH THERAPY PROGRAMS

Lee Silverman Voice Training

Vocal training conducted by Speech Language Pathologists. Voice training is important for those with PD to maintain or regain a strong voice, plus maintain or improve swallowing. Swallowing difficulties are common in later stages of Parkinson’s Disease. Physician referral often required.  Most insurance companies cover cost.  Contact clinic for more information.

 

Unity Point – St Luke’s, Cedar Rapids

Renee Perlwitz, SLP 319-369-7331

 

Mercy Medical Center Council St, Cedar Rapids

Kelly Martin, SLP 319-398-6881

 

Wendell Johnson Speech and Hearing Clinic, Iowa City

Ann Fennell, SLP 319-335-8736


SPEAK OUT!®

SPEAK OUT!® followed by The LOUD Crowd® is a two-part speech therapy program for individuals with Parkinson's developed by Parkinson Voice Project. SPEAK OUT!® consists of intensive individual speech therapy sessions and the goals are to strengthen the muscles for speech/swallowing and to teach individuals to speak with intent. Upon graduating SPEAK OUT!®, individuals transition to the maintenance program, The LOUD Crowd®


Progressive Rehabilitation Associates, LLC

Megan Batzer, M.A., CCC-SLP 319-688-7630

In-patient: Mercy Iowa City   Out-patient clinics: Mercy Medical Plaza and Tipton


Wendell Johnson Speech and Hearing Clinic

Ann Fennell M.S., CCC-SLP 319-335-8736


Unity Point – St Luke’s, Cedar Rapids

Renee Perlwitz, M.S.,CCC-SLP 319-369-7331


LINN COUNTY EXERCISE/WELLNESS CLASSES

All exercise/wellness classes are held at the Eastern Iowa Parkinson’s Wellness & Resource Center 260 33rd Ave SW, Suite G Cedar Rapids

Contact Kris Cameron  319-361-7673 crmparkinsons@gmail.com for class information, or visit www.crmetroparkinsons.com for a current schedule.


Moving With Parkinson’s Exercise - Level 2

          Mon/Tues/Thurs/Friday  10:30am-11:30am


Moving With Parkinson’s Exercise - Level 1 (beginner or assistance required)

          Mondays  12:00-12:45pm  

             

Fighting PD - Boxing for Parkinson’s

          Tues/Thurs  1:30pm-2:30pm


PD Dance Moves

          Wednesdays 10:30-11:30am


Parkin-Singers 

          Wednesdays  1:30pm-2:30pm


Chair Yoga

         Thurs  12:00-1:00pm


Cedar Rapids Support Group

         Third Thursday of each month (no regular meeting in Nov or Dec)  6:30pm

          St Patrick’s Parish Hall   120 5th St NW Cedar Rapids


JOHNSON COUNTY EXERCISE/WELLNESS CLASSES

Moving With Parkinson’s Exercise

            Wednesdays/Sundays  12:45pm-1:45pm  $5/class or $50 punch card

            The Center  28 S Linn St  Iowa City

            Contact Kris Cameron  319-361-7673 or kris@renuyourlife.com


Movement with PD

             Thursdays   1:00-1:45pm   $3.00 per class

             Nolte Dance Academy 1619 2nd St-Coralville

             Contact Leslie Nolte at Nolte Dance Academy 319-688-9289 or       

             frontdesk@nolteacademy.com


Rock Steady Boxing

             Mondays and Wednesdays at 3:30PM and at 12:00PM on Saturdays

             ICOR Boxing  1127 Shirken Drive  Iowa City   

             Contact Clif Johnson & Emily Klinefelter at 319-244-8282 or 

             iowacity@rsbaffiliate.com

             Website http://iowacity.rsbaffiliate.com/ 


Iowa City Support Group

             Third Tuesday of each month at 6:00pm  Location varies 

             Contact Dottie Armens 319-512-1193  d_armens@hotmail.com


STATE AND NATIONAL ASSOCIATIONS

AMERICAN PARKINSON’S DISEASE ASSOCIATION – Iowa Chapter 

(Sign up for quarterly magazine and notification of Annual Iowa Parkinson’s Conference)

https://www.apdaparkinson.org/community/iowa/  or  515-241-6379


PARKINSON’S FOUNDATION-CENTER OF EXCELLENCE AT THE UNIVERSITY OF IOWA

https://uihc.org/news/ui-named-center-excellence-parkinsons-care 


Davis Phinney Foundation for Parkinson’s   www.davisphinneyfoundation.org  866-358-0285

Wellness focused (request free “Every Victory Counts” manual and/or “Parkinson’s Exercise Essentials” DVD)


Parkinson’s Foundation  www.parkinson.org Helpline 1.800.4PD.INFO (1-800-473-4636) 

for answers to all your questions. Staffed by nurses, social workers and therapists, the Helpline is here to support you in any possible way. Offers online webinars so you can learn at home about the latest research, developments, and wellness.

(request free “Aware In Care Kit” containing tools and information to share with hospital staff during a planned or emergency hospital visit)


Michael J Fox Foundation  www.michaeljfox.org 1-800-708-7644

Research and advocacy focused. Get involved in research and trials in your area or join Fox Insight, an online clinical study. Data is being collected for the study right here at the University of Iowa. 

Offers online webinars so you can learn at home about the latest research, developments, and wellness.


American Parkinson’s Disease Association  www.apdaparkinsons.org 1-800-223-2732

The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works to assist the more than 1 million Americans with PD live life to the fullest.

Offers online webinars so you can learn at home about the latest research, developments, and wellness.



Support for Care Partners

caregiving

CAREGIVING SUPPORT

*All the above associations offer caregiver information and support.


Family Caregivers Center of Mercy   901 8th Ave. SE  Cedar Rapids  (319) 221-8866

The Family Caregivers Center of Mercy is Eastern Iowa’s only comprehensive resource serving family caregivers caring for adults. Services are available for caregivers regardless of their hospital or physician affiliation.


Unity Point Caregivers Support Group  1026 A Ave NE  Cedar Rapids   

Mondays 4:00-5:00pm  St. Luke’s Hospital 6th Floor Lounge


National Alliance for Caregiving    www.caregiving.org 

The Caregiver Space   www.thecaregiverspace.org

Well Spouse Association  www.wellspouse.org


RECOMMENDED PUBLICATIONS

  •  Brain & Life Magazine (American Academy of Neurology)   www.brainandlife.org
  • 10 Breakthrough Therapies for Parkinson's Disease (book)  Michael S. Okun M.D.
  • 300 Tips for Making Life with Parkinson's Disease Easier (book) Shelley Peterman Schwarz
  • A Parkinson’s Primer: An Indispensable Guide to Parkinson’s Disease for Patients and Their Families  (book) John Vine
  • Parkinson’s Treatment: 10 Secrets to a Happier Life (book) Michael S. Okun M.D.
  • A Life Shaken  Joel Havemann
  • Brain Storms: The Race to Unlock the Mysteries of Parkinson's Disease Jon Palfreman
  • Both Sides Now: A Journey from Researcher to Patient  (book) Alice Lazzarini, PhD
  • A Funny Thing Happened on the Way to the Future: Twists and Turns and Lessons Learned  (book) Michael J. Fox
  • A Soft Voice in a Noisy World   Karl Robb
  • The New Parkinson’s Disease Treatment Book: Partnering with Your Doctor to Get the Most from Your Medications, 2nd Edition  (book) Dr. J. Eric Ahlskog
  • Parkinson's Diva: A Woman's Guide to Parkinson's Disease (book)Maria De Leon MD